NAAF is pleased to announce the launch of a new free webinar series, You Are Not Alone: NAAF Education and Empowerment Webinar Series. We recognize the crucial need for the patient community to interact with medical professionals and experts with experience on topics specific to alopecia areata. In the coming months, NAAF will present 12 webinars on a variety of relevant topics presented by a diverse set of speakers that will empower and educate our community members wherever they are on their journey with alopecia areata.
NAAF gratefully acknowledges the support provided by Eli Lilly and Company for the You Are Not Alone: Education and Empowerment Webinar Series.
Wednesday, February 15, 2023 - 7pm ET/ 6pm CT/ 4pm PT
Patient Guide to Clinical Trials and Drug Development: Phases and Terminology Explained!
Speaker: Danielle Quarles - Director of Clinical Operations, Sana Biotechnology
Have you read announcements for clinical trials but don’t quite understand what they mean? Do you want to feel comfortable advocating for yourself when discussing clinical trial options with your doctor? Join us to learn about drug development including how clinical trials are planned, the phases they go through, and the role that patients play in clinical trial conduct. We will cover questions to ask your doctor, things to consider when evaluating whether to participate in a trial, and how your participation could move alopecia areata treatments closer to FDA approval. Speaker Danielle Quarles will share her expertise in this area. This presentation will focus on clinical trials for adults.
JAK INHIBITOR TREATMENT FOR ALOPECIA AREATA: UNDERSTANDING SIDE EFFECTS AND MONITORING
Speaker: Maryanne Senna, MD - Assistant Professor of Dermatology, Harvard Medical School Director, Lahey Hair Loss Center of Excellence and Research Unit, Beth Israel Lahey Health
Learn more about JAK inhibitors for the treatment of alopecia areata. Dr. Maryanne Senna will explain the warning labels on JAK inhibitors, where they come from, and what is known about the risks of JAK inhibitor therapy. She will also review proper laboratory testing and other monitoring for people undergoing treatment. The main objective of this talk is to provide information and data to help support educated and evidence-based treatment decision making for people with alopecia areata.
Originally aired January 18, 2023 - WATCH VIDEO HERE
HANGING WITH OUR YOUNG ALOPECIANS
Speaker: Georgia Van Cuylenburg
Alopecians are superheroes and Georgia Van Cuylenburg believes our young Alopecians are the Elite Squad! In this month’s webinar, we invite you to join a panel of young Alopecians in a safe and supportive space where we can talk about what it’s like to be a young person with alopecia areata - the good, not so good and the in between. Yes, this is an hour for our youngins but we invite parents and folks of all ages to join us in experiencing and celebrating our Elite Squad's tenacity, wisdom, and magic!
Originally aired December 7, 2022 - WATCH VIDEO HERE
WIGS AND INSURANCE: HOW TO ADVOCATE FOR THE COVERAGE YOU DESERVE
Speaker: Supriya Surender
Join Supriya Surender as she shares her personal hair loss experience and how she navigated the insurance world to successfully receive reimbursement for her wigs.
NAVIGATING PRIOR AUTHORIZATION AND INSURANCE APPEALS FOR WIGS, CRANIAL PROSTHETICS, AND MEDICATIONS IN ALOPECIA AREATA
Speaker: Arash Mostaghimi, MD, MPA, MPH, Brigham & Women’s Hospital/Harvard Medical School
The complexities of health insurance coverage are often challenging to navigate. Dr. Arash Mostaghimi, Assistant Professor of Dermatology at Brigham & Women’s Hospital/Harvard Medical School will review the process of prior authorization and share best practices negotiating with insurance companies to improve timely access to treatments for alopecia areata.
Originally aired September 21, 2022 - WATCH VIDEO HERE
PEDIATRIC ALOPECIA AREATA: TREATMENT OPTIONS FOR CHILDREN
Speaker: Brittany Craiglow, MD , Associate Professor Adjunct – Dermatology, Yale School of Medicine
Pediatric dermatologist Britt Craiglow, MD, presents on alopecia areata in children, including current treatment options and navigating treatment conversations with healthcare providers.
Originally aired October 12, 2022 - WATCH VIDEO HERE
IDENTIFYING BULLING AND STANDING UP TO IT SAFELY
-Barbara Truluck, NCC, Georgia School Counselor
-Kristina Gorbatenko-Roth, PhD, LP, University of Wisconsin Stout
Individuals with alopecia areata, especially kids, are frequent targets of bullying. When adults respond quickly and consistently to bullying behavior, they send the message that it is not acceptable. Research shows this can stop bullying behavior over time. Parents, school staff, and other adults in the community can help kids prevent bullying by talking about it, building a safe school environment, and creating a community-wide bullying prevention strategy. In this webinar, learn how you can be a leader in preventing bullying in your community.
Originally aired August 25, 2022 - WATCH VIDEO HERE
ALOPECIA AREATA TREATMENT UPDATE: A NEW FUTURE AWAITS
Speaker: Brett King, MD, PhD
Advancements in our understanding of alopecia areata have led to new and emerging treatments, including the recent first-ever FDA-approved medicine for the disease. In this webinar, Dr. Brett King, MD, PhD, Associate Professor of Dermatology, Yale University School of Medicine, will discuss these treatments, how they work, and the results of clinical trials, in order to provide attendees with the most up-to-date information regarding these exciting developments. Dr. King specializes in inflammatory and autoimmune skin diseases. He is a pioneer in the use of JAK inhibitors in the treatment of alopecia areata and he has been the lead on multiple clinical trials to test their effectiveness.
Originally aired July 13, 2022 - WATCH VIDEO HERE
RESILIENCE, COURAGE AND CONFIDENCE
Speakers: Shamsha Damani and Sofia Martinez
As part of NAAF's "You Are Not Alone: NAAF Education and Empowerment Webinar Series," our first of 12 webinars kicked off with “Resilience, Courage and Confidence” featuring Shamsha Damani and Sofia Martinez. Shamsha was diagnosed with alopecia universalis since 2013 and serves as a support group leader and Health and Research Ambassador (HARA) for NAAF. Sofia is an engineer and the founder of “Oh Hell Yeah I Am,” a Life Coaching company. She has dealt with alopecia since she was 6 years old. In this webinar, they worked through the notions of resilience, courage and confidence and identify practical tools to become resilient, practice courage and develop confidence so you can start to feel good in your own skin.
Originally aired June 9, 2022 - WATCH VIDEO HERE
Visit our PAST WEBINAR page for links to recordings with more educational and supportive information.
Originally aired September 21, 2022 - WATCH VIDEO HERE