Events

*Note: If this is your first time attending, you must RSVP and fill out a form prior to attending.

Hosts: Rafi & Ezra

Rafi (29) was diagnosed with Alopecia in the 1st grade and has been involved with NAAF in various forms ever since! After receiving such great support at his first conference in St. Louis, Rafi has enjoyed building an ever growing Alopecia community through working with NAAF and attending 17+ conferences. Outside of AA, Rafi is a native of the Chicagoland area and currently resides in New York City where you can find him running, spending time with friends and following his favorite sports teams (Liverpool FC and the Chicago Cubs). He is looking forward to getting this Support Group going!

Ezra Key-Cohen (18) is a college student attending Wesleyan University. He was diagnosed with alopecia universalis at 11 years old, and lost all the hair on his head, eyebrows, and arms/legs in the weeks after his diagnosis. As a young boy, admitting that he was suffering because of his appearance felt emasculating. In recent years, Ezra has gained the strength to seek help and talk about the challenges he experiences with alopecia. Outside of being a youth mentor for NAAF, he enjoys creating short documentaries, playing guitar, and watching football (Fly Eagles Fly!).

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

2025 Support Meeting Dates:

• May 2o
• July 29
• September 9
• October 14
• November 18

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

Q & A with Dr. Netravali – Pediatric Dermatologist at Sandford Children’s Hospital

Please follow the link to RSVP

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

Mary has lived with alopecia for over 25 years. She’s a psychotherapist experienced working with children, adults and families. This support group is aimed at providing those living with alopecia emotional support, material resources, and a place to share their experiences. This virtual support group is open to adults living with alopecia, children and their caregivers.

*Note:  If this is your first time attending, you must RSVP and fill out a form prior to attending.

Your Host:  Mary

Mary has lived with alopecia for over 25 years. She’s a psychotherapist experienced working with children, adults and families. This support group is aimed at providing those living with alopecia emotional support, material resources, and a place to share their experiences. This virtual support group is open to adults living with alopecia, children and their caregivers.

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.