Advocacy

alopecia areata advocates who are part of the Legislative Liaison and Legislative Mentor programs. Also, learn about the NAAF legislative agenda 

As the voice of the alopecia areata community, NAAF volunteer advocates work to advance three legislative priorities. By doing this they raise awareness of alopecia areata among members of Congress, federal agencies and state legislators to help our lawmakers understand that alopecia areata is an autoimmune disease and it is not just hair.

  1. Increase alopecia areata research funding supported by the National Institutes of Health (NIH) and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).
  2. Pass legislation that will provide insurance coverage for those with alopecia areata needing a cranial prosthetic, or wig. Most insurance carriers do not provide such coverage under the pretext that alopecia areata is a cosmetic condition. Federal legislation would reclassify wigs as “durable medical equipment” eligible for Medicare coverage, which would encourage private insurers to follow. We are also pursuing wig coverage legislation in various states.
  3. Increasing treatment accessibility and affordability, ensuring FDA-approved therapies are available to anyone who wants them.

Become an Advocate