Youth Mentor Program

Hey! My name is Christine, I'm 25 and I was born, raised and currently reside in Boston, Massachusetts. I was diagnosed with Alopecia at the age of 20 while I was in my Junior year of college. During that time my mother was very ill and had gone into hospice and shortly after died. For this reason my dermatologist attributes my Alopecia Universalis diagnosis to stress. No one in my family has had alopecia nor had I shown any signs of Alopecia during my childhood. My diagnosis and new life as someone with Alopecia has been nothing short of a journey. Initially I was very closed off however I have truly come to embrace and love that I don't have hair! I currently work as an Emergency Medical Technician for the City of Boston and I own a small wood-working craft type business on the side. Through both of my jobs I am constantly interacting with the public which has in turn made me more comfortable with who I am. I'm so excited to become a youth mentor and help whoever I can in this alopecia journey.

Hi! My name is Elisabeth, and I'm a college freshman. I'm currently at College of Marin but will be attending the University of San Francisco in the fall of 2023. I've grown up in Marin County all my life and have fallen in love with San Francisco and all it has to offer. That said, I'm the BIGGEST Giants and Golden State Warriors fan. I play volleyball, love music of all kinds, and am the biggest Studio Ghibli & Disney/Pixar enthusiast.

I started to lose my hair when I was 13 (May 2017). I began to see doctors in my area, and about a month later, I was diagnosed with alopecia areata. It started out as small patches, and by the end of the month, my hair was all gone. It was really hard, especially as a middle schooler, having to go around with hats or wraps covering my head and being unable to explain what was happening to my peers. Being scared of wigs did not help my situation at all. My hair slowly grew back, and to this day, I've had random, patchy flare-ups every month or so from 8th grade to my senior year in high school. It started to fall out again in April of my senior year, which took a massive toll on my mental health, more so than it did in middle school and all of my hair fell out again. 

Luckily, I had (and continue to have) such a fantastic support group in my family and friends. I want to give those in this mentor program the comfort and reassurance I needed when I first discovered I had alopecia. It's hard, and at first, you'll feel alone in this new world, but I want to be able to give the kids, and their parents, the support that I really needed at the beginning of all the craziness and to know that you're never alone!

Hi, I’m Allie! I’m currently in my junior year of high school. I was born and raised in south Jersey, so I’m a diehard Philly sports fan. I love exploring the outdoors and going on trips with my family and friends. My journey with alopecia started my freshman year when i noticed a few, small, bald spots around my head. Developing alopecia during such a big transitional period in my life definitely took a stab at my mental health. Luckily, I was (and still am) blessed to be surrounded by such amazing and supportive people who have made this journey so much easier. My goal is to be that support system to someone else who needs it now as much as I did then.

Hello! My name is Christine and I am originally from Stillwater, Minnesota and currently I am living out in Salt Lake City, UT. I attended the University of Minnesota where I studied Economics with an emphasis on Mathematics. Fresh out of college I began working for General Mills (go Cheerios!) and since then I have been relocated from MN to Utah where I absolutely love what I do. On a more somber note, I was diagnosed with alopecia areata the summer before I headed off to college (18 years old). At the time I was absolutely devastated, but as I got more comfortable with my diagnosis it became very clear to me that those who love you do not care about what you look like and that inner beauty is what truly matters. This is something that still holds true for me and has impacted my life in numerous ways. Although this disease is burdensome there always is a silver lining and hope! When I was first diagnosed, I chose to keep my alopecia a secret by covering up spots in sneaky and creative ways as well as utilizing hair extensions. I didn’t have anyone to talk to or to discuss my feelings with, looking back that was my biggest mistake. Wanting to help others with this disease and give them the outlet I so wish I had when I received the news is why I chose to reach out to NAAF and become involved in this program. I am who I am today because of this disease and it seems crazy to say but I would do it all again, it has given me strength and confidence and has instilled in me a spirit of endurance and acceptance that has led me to become the successful business woman I am today!

My name is Lindsey Graham, and I am originally from the Chicago suburbs of Illinois, but I currently attend the University of Iowa, and live in Iowa. I am double majoring in elementary education and art. I lost my hair just a year ago, when I was 20. I randomly started to experience hair loss, and after seeing a couple of doctors I was diagnosed with Alopecia. Within 2 weeks, I had lost all the hair on my head. This was shocking for me losing it all so quickly, and living 20 years prior without experiencing anything like this. I started by wearing wigs, but eventually I realized this was just an unnecessary strain on my life and I started to wear hats. My hair is now growing back, but I am unsure how long this will last. Either way, I have found peace with how things keep changing, and I have continued to live my life as normally as anyone else. Some things that I like to do are paint/ draw, spend time with my new puppy, hangout with my friends, go hiking, and watch movies. I also take Italian at the University and I love it, and am even going to Italy soon. Mentoring interests me because I am very extroverted and love to meet new people, especially people who are dealing with similar things as me!

"Hi there! My name is Leon, and I was born in the Big Apple aka NYC. I lived there until I was 11 and then moved to Washington State where I have been ever since. I am 23 and I work as a Real Estate Valuation Analyst for a global commercial real estate firm. I love playing basketball and watching all kinds of sports from football to soccer. I also enjoy going to the gym, playing video games occasionally, and spending time outdoors if the weather isn’t too gloomy here in Seattle. Creatively, I challenge myself by making different kinds of recipes from different cuisines I find on Pinterest or through family.

My journey with Alopecia started when I was about 8 years old. I had started out with patches and eventually was diagnosed with Alopecia Areata. I was so insecure for the longest time and always felt like I was different from everyone else, which I was, but in a bad way. It wasn’t until I was a sophomore in high school that I finally decided to own how I look and respect that this is who I am.

I would be so excited to be a mentor to someone also going through this because I can only imagine how different my life would have been as a kid if I had someone to relate to. I am open to answering all questions about my experience and of course building a great friendship!"

Originally from Chicagoland, I attended DePaul University (Go Demons!) where I continued to play soccer, as I have my entire life. In my spare time I like to sew, craft, DIY, play sports, watch movies/TV shows, and bake goodies. When I’m not crafting while watching TV and snacking on tasty goods, I travel the world and have adventures with friends and family. As for my bald body, I was first diagnosed with alopecia at 12 years old. It manifested as random bald spots on my head but I was always able to cover them up with the rest of my hair. For me, alopecia started out as a big secret. I was really depressed and didn’t want to go anywhere, even school. My hair eventually grew back. Years later, after I moved to New Orleans, I found the NOLA Alopecia Support Group while searching online. At this point, I had full hair growth on my head and body, but I didn’t know anyone else with alopecia, so I joined the group on a whim. Four months later, my hair was falling out again. Unlike previously, this time my hair fell out quickly and within 2 weeks nearly all of the hair on my body was gone. I didn’t recognize myself in the mirror. Thankfully, I had my support group to fall back on. Sometimes I wear hats (in the sun!), sometimes I wear scarves, and sometimes I “go bald.” I look forward to supporting another, as I once was.

Hey there! My name is Jessa Ponce and I’m from San Diego, California. I was diagnosed with Alopecia Areata when I was a sophomore in highschool. I lost all of my hair at 15 years old. From having a full head of hair to none, initially I felt trapped and lost, but I realized I wasn’t alone! Leading up to college my hair grew back, but ultimately my hair loss has taught me how to have compassion for myself and others. More about me, I have a lot of hobbies! I enjoy public speaking as I gave a TEDTALK in February 2022 titled “Finding Security Through Our Insecurities.” I love puzzles, in fact I can solve a Rubik’s cube in 15 seconds and have been solving them since I was ten years old. I love photography and video editing, specifically portraits and my cooking videos. I can also juggle. I look forward to meeting you and to create new experiences together! 

Hi my name is Calvin! I am a UC Davis graduate and in my spare time I like to create new acquaintances and participate in sports such as tennis and basketball. I was diagnosed with alopecia areata during my Junior year of high school. Through a series of flares, I learned to better overcome negative intrapersonal thoughts and be comfortable living with alopecia. Alopecia has allowed me to become truly understanding of the differences in people’s perception and approach others with integrity. As a mentor, I want to empower you in developing a healthy mindset and guide others to feel comfortable with one’s self. I look forward to learning about your experiences and supporting in the best way I can!

Hello! My name is Mikayla Mango. I am 18 years old, I was diagnosed with alopecia when I was 13 and a 7th grader in middle school. I lost all of my hair and wore a wig for 3 years, I now get spots at random around my scalp. I kept my alopecia very private up until March of 2022. I want to show everyone that their voice matters, I want to help be the light at the end of the tunnel for those who feel in the dark. I have been a part of NAAF for 3 years now and continue my advocacy work but am very eager to help others along their amazing journeys!

Hey, I'm Ezra. I'm a high school senior in Houston, Texas. I enjoy playing musical instruments (guitar, saxophone, and piano), soccer, watching football (Fly Eagles Fly), and playing video games. I was diagnosed with Alopecia Universalis at 11 years old, and lost all the hair on my head, eyebrows, and arms/legs in the weeks after my diagnosis. As a mentor, I hope to spend quality time with mentees and impart any tips or advice I've learned throughout my Alopecia journey while having some fun!

Hi, I’m Orly! I grew up in Jersey, and recently moved to Philly to begin dental school. I enjoy outdoor activities like hiking, bike riding, and whale watching. I love exploring new places with my husband and friends, and I also enjoy playing board games and doing puzzles. I have had Alopecia for the past twelve years; areata for four years and universalis for eight years. When I was diagnosed at age 11, I was devastated and sure that I would never feel normal again. So much of my time and thoughts were consumed by covering up the bald spots and worrying that people would notice. Then, when I was in 9th grade, 85% of my hair rapidly fell out over the course of a week! At that time, being bald felt so dehumanizing. I distinctly remember looking at my bald head in the mirror as I stretched out my arms. With my arms outstretched, I felt more like a starfish than a human, because my hairless head felt more to me like a fifth limb than a human head! On top of that, I didn’t know anyone else with alopecia universalis, so I felt very alone. Since I could no longer hide my alopecia, I was finally forced to confront it head-on, and I decided that I wasn’t willing to let it stop me from living my life. Over time, and with the support of my wonderful family and friends, I have achieved a level of comfort with my alopecia that it no longer negatively impacts my life. In fact, I am aware of many positive ways it has shaped me as a person. I wish that a mentorship program like this existed when I was first going through this process, because I believe that connecting with even one other person with alopecia would have made my journey a lot easier. That is why I am excited to provide that support for someone else going through the same thing I went through. I am looking forward to connecting with you!