NAAF Awarded Grant Through Genetic Alliance
On March 24, 2015, Genetic Alliance announced the National Alopecia Areata Foundation (NAAF) as one of the fifteen awardees for Phase I of its initiative to create a ‘white label’ of the Platform for Engaging Everyone Responsibly (PEER). PEER enables individuals to share health information with researchers and each other on their own terms to advance an understanding of health and disease, and to accelerate the development of cohorts for clinical trials. The fifteen selected awardees will work with Genetic Alliance to develop and refine the ‘white label’ PEER while engaging their communities.
The Platform for Engaging Everyone Responsibly (PEER) enables individuals to share health data on their own terms. Individuals set their own data sharing, privacy, and access preferences. With the help of guides from their community, they choose settings that strike a balance between their desire for solutions to their medical needs and their sensibility about privacy. This allows dynamic and granular contextual engagement.
Genetic Alliance engages individuals, families, and communities to transform health. Founded in 1986, it is the world's largest nonprofit health advocacy organization network. Genetic Alliance's network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations.
NAAF is very proud to be selected for this award.