Mark Zuckerberg, Facebook Unvieling, March 4th 2016. Getty Images,

Mark Zuckerberg Supports Alopecia Areata Awareness!

Apr 04, 2016

Those who attended last year’s National Alopecia Areata Foundation Annual International Conference in Garden Grove will remember multi-talented Abby Asistio closing the event with an inspirational talk and new song.  Recently, Abby had the opportunity to spread awareness of alopecia areata and share her story with none other than Mark Zuckerberg, Founder & CEO of Facebook.  Here she describes how this significant meeting came about:

“In February 2016, I had an amazing opportunity, not just for me but for the whole alopecia areata community, when I was chosen as 1 of 18 invited by Facebook for their 12th Anniversary Friends Day Celebration with Rachel Regal. 

I met Rachel through the Double-A Alopecia Awareness hand sign campaign that I started in 2012, and we've been ‘connected’ ever since. Last year, Facebook Stories featured how Rachel and I  were able to build a friendship, as well as campaign for alopecia areata awareness using Facebook! 

This past February, , the eighteen of us had the chance to tour Facebook headquarters in Menlo Park, California, meet and chat with the people behind Facebook (Founder & CEO Mark Zuckerberg, COO Sheryl Sandberg, CPO Chris Cox, and a whole lot of other awesome people), get crazy cool gadgets and have one of the best experiences of our lives. 

We can all do our part to change the world for the better. Sometimes all it takes are simple, genuine, encouraging words, photos, and videos --- stories that make a huge difference in others' lives. If we are just faithful with the little things, we wouldn't know how large they could grow, how far they could go. Both my NAAF and Facebook experience started with one very honest sentence: ‘I'm Abby, I have alopecia, I'm bald and I want to raise awareness about this  disease and help others  with this condition’. Now the campaign has reached people and places I never thought it would reach. My story has touched people and places I never thought it would touch. I'm grateful I took that leap of faith and took the route of being strong and courageous. I'm glad I learned to rise above my condition and embrace my uniqueness.”

Topical Ruxolitinib for the Treatment of Alopecia Universalis
NAAF Advancing Alopecia Areata Research at AAD Annual Meeting