Legislative Liaisons Lead Push for Research Funding, Treatment Development, and Insurance Fairness

Jul 01, 2014


Twenty-nine Alopecia Areata Legislative Liaisons and 61 other community group members met with 24 U.S. representatives and senators in April and May at the legislators’ local offices in cities and towns across America. The Legislative Liaisons were encouraged to bring family and support group members, as lawmakers are often more encouraged to act when they see the numbers of their constituents who are affected by alopecia areata. When meeting with their elected officials, the Legislative Liaisons shared their alopecia areata experience and asked the lawmakers to:

  • Advance medical research by providing the National Institutes of Health (NIH) with $32 billion in Fiscal Year 2015. Legislators were also urged to inquire about opportunities for alopecia areata research through the NIH’s new Accelerating Medicines Partnership, which is currently studying rheumatoid arthritis.
  • Facilitate treatment development through the Food and Drug Administration’s[KH1]  Patient-Focused Drug Development Initiative
  • Improve patient care through encouraging the Centers for Medicare and Medicaid Services to consider policy changes that would promote fairness and commonsense with the application of cranial prosthetic benefits.

Now approaching its third year, the Legislative Liaisons program is open to anyone in the alopecia areata community who wishes to establish and cultivate relationships with their U.S. representatives and senators in order to educate them about alopecia areata and encourage their support for our legislative objectives. Liaisons are assured, well-informed Americans speaking on behalf of themselves and their 6.5 million fellow citizens who share this disease. If you’re interested in learning more about the Alopecia Areata Legislative Liaison program, or even becoming a liaison yourself, please contact Gary Sherwood at gary@naaf.org or 415-472-3780.  

 [KH1]Here and elsewhere, please remember that we don’t need abbreviations unless they help to shorten additional mentions of an organization.

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