HearUs Campaign Results

Nov 28, 2017

Successful Campaign Raises Awareness and $44K ... Read more

In celebration of Alopecia Areata Awareness Month, NAAF launched the HearUs Campaign with a four-week challenge, inviting you to raise funds and awareness and respond to our Question of the Week. And you showed up!

We want to extend special thanks and congratulations to two people:  

1)            The HearUs Top Fundraiser Award goes to Mollie Tuttle.

2)            The HearUs Top Awareness Raiser Award goes to Jennifer Tillie Weiner.

And we offer a special thank you to the other 66 community members who created their own fundraising pages for this event.

The HearUs Challenge raised $44,252, which will support NAAF’s programs of support, education and research.

NAAF is also working on a Tool Kit to provide people with tips and resources for navigating life with alopecia areata. Our first question of the week, “What is Alopecia?” attracted 93 responses. We polled you on your choices for the “Top 10” so that we can create a poster with those answers — and here they are:  

1.            Alopecia areata means never having a bad hair day. Megan Enloe

2.            Alopecia areata is a way to prove to the world you are beautiful on the inside as well as the outside. With or without hair. Jess Shehan

3.            Alopecia areata is finding the strength to teach your young daughter AND others that beauty is not in your hair but your heart. Stephanie Jackson-green

4.            Alopecia areata brings out the true beauty in your child and the true character of his friends. Cynthia Hegerty

5.            Alopecia areata is an autoimmune disease where you lose your hair and gain an undefeatable character! Marie Andree Schambach de Bouscayrol 

6.            Alopecia areata is the condition that lets true beauty shine inside and out. Deb Notal

7.            Alopecia areata is a gift, as it has taught me who and what is important in life. Maureen McGettigan

8.            Alopecia areata gives me all the more reason to express myself, build my character, and truly know what it means to love the skin I’m in. Briana Stafford

9.            Alopecia Areata allows me to command attention in a crowd, it is a state of being transparent, and my truth! JaQuay Powell Wyatt

10.          Alopecia areata is an autoimmune disorder that can sneak up quickly and unexpectedly and change your world instantly. It makes you stronger to deal with almost everything in life since you have already dealt with one of the hardest emotional challenges that anyone has had to deal with. Heather Lo Duca

Thank you all so much for showing up, for letting us HEAR YOU, for being part of the effort to galvanize our voices in response to the FDA’s Patient-Focused Drug Development meeting, and for raising awareness on a broad level in order to increase understanding of alopecia areata as well as both the emotional pain and resiliency that often accompanies living with difference.

We know these efforts are helping others each day!


 

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