Latest News

Advocacy & Awareness
Monday, July 20, 2015
The National Alopecia Areata Foundation is raising awareness and increasing understanding of alopecia areata by calling attention to the shared challenges and triumphs of people living with any autoimmune or skin disease, hair loss, or the emotional pain that so often accompanies living with difference. In doing so, we hope to bring our stories to strengthen a budding national dialogue as we work together to increase acceptance and relieve suffering. The SeeUs Campaign is our approach to reducing the stigma of difference and celebrating the uniqueness and resiliency of people living with...Read more
Advocacy & Awareness
Thursday, July 2, 2015
On Thursday, July 2, the Food and Drug Administration (FDA) announced alopecia areata was one of eight diseases selected for a highly-coveted Patient-Focused Drug Development Initiative (PFDDI) meeting during FY 2016- 2017. The FDA committed to PFDDI with the goal of obtaining the patient perspective on certain disease areas. This information is a critical aspect of the FDA’s decision-making as it establishes the context in which the regulatory decision is made, and provides a more systematic approach for obtaining the patients' perspective on disease severity and currently available...Read more
Research
Wednesday, May 27, 2015
NAAF is pleased to publicize the release of 2015 Research Funding Announcements (RFAs) that outline Research Grant opportunities the support scientists and clinicians at various career stages and in numerous aspects of the field to pursue promising research ideas and innovative projects that will advance the development or discovery of safe, effective, affordable treatments and a cure for alopecia areata. These RFAs were publicized at the Society for Investigative Dermatology (SID) conference in Atlanta, Georgia in early May. This was a fitting venue for announcing RFAs since this meeting...Read more
Support & Education
Tuesday, May 12, 2015
We are pleased to announce that NAAF was approved for a Eugene Washington PCORI Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI) to support NAAF’s Annual Patient Support Conference this June! The Conference brings together patients, partners, physicians, researchers and industry, providing an ideal forum for patient partner engagement, support and community leadership development. Individuals with alopecia areata and their loved ones gather together to share their experiences with one another and to learn directly from leading scientists and medical professionals...Read more
Research
Friday, April 3, 2015
RXi Pharmaceuticals has entered into a collaboration with Dr. Maria Hordinsky of the University of Minnesota and the National Alopecia Areata Foundation (NAAF) for the study of Samcyprone™ in the treatment of alopecia areata, with the aim to optimize the treatment regimen of diphencyprone is this dermatological disorder, and to better understand the mechanism of action of the drug in this disease. This collaboration could lead to novel targets for development of potent RNAi compounds against this disease based on our sd-rxRNA® platform. Maria K. Hordinsky, M.D. is Professor and Chair of the...Read more
Research
Wednesday, April 1, 2015
On March 22, 2015 a group of seventeen NAAF patient-stakeholders, NAAF staffers Laura Ralph and Maureen Smith, and ten representatives from a biopharmaceutical company convened in New York City, at the request of the biopharma for a focus group to learn more about what patients would want-and not want – in a treatment or cure. The five-hour focus group was filled with personal stories of struggle and triumph, helpful insights about what it means to live with alopecia areata, and important things to consider when developing a treatment such as its safety, efficacy, and durability. All...Read more
Research
Tuesday, March 24, 2015
On March 24, 2015, Genetic Alliance announced the National Alopecia Areata Foundation (NAAF) as one of the fifteen awardees for Phase I of its initiative to create a ‘white label’ of the Platform for Engaging Everyone Responsibly (PEER). PEER enables individuals to share health information with researchers and each other on their own terms to advance an understanding of health and disease, and to accelerate the development of cohorts for clinical trials. The fifteen selected awardees will work with Genetic Alliance to develop and refine the ‘white label’ PEER while engaging their communities...Read more
Support & Education
Wednesday, February 18, 2015
We are pleased to announce Barbara Henderson, an author who writes under the name Bea Davenport, will be hosting her first writing workshops in the United States at NAAF’s 2015 International Conference in Anaheim, California, this June. “There is some evidence to show that creative writing is a therapeutic and personally empowering activity,” Barbara says. “So I hope the workshops will be a fun and entirely suitable addition to the Conference program.” The British author, who teaches creative writing for the Open College of the Arts, the Penguin Random House Writers Academy, and several...Read more
Support & Education
Tuesday, February 10, 2015
Make your plans to attend the 30th Annual NAAF International Conference, which will take place Thursday, June 25, through Sunday, June 28, in Garden Grove, California. Garden Grove is a vividly progressive and growing city situated in the heart of sunny Southern California in Orange County. This unique region has a lively yet laid-back vibe, a creative spirit and a diverse range of activities that make it one of the nation’s most popular destinations. Orange County is home to world-famous theme parks, distinguished shopping centers, dynamic meeting venues and trendy beach towns, making it the...Read more
Research
Tuesday, February 10, 2015
The fifth Alopecia Areata Research Summit, From Targets to Treatments: Bridging Autoimmune Research to Advance Understanding of Alopecia Areata, brought together leading experts with new investigative partners to discuss exciting new discoveries and identify opportunities to further advance alopecia areata research. This meeting, held December 4 to 5 in Bethesda, Maryland, represented a pivotal moment for alopecia areata research and treatment development with early stage clinical trials of drugs targeting auroimmune pathways showing promising hair regrowth for the first time ever. Among the...Read more
Support & Education
Tuesday, February 10, 2015
Charlie Villanueava may have signed with a new team – the Dallas Mavericks – but he remains a friend and hero to the alopecia areata community as he meets local alopecia areata families at basketball games across the country. For further information, contact Gary Sherwood, gary [at] naaf.org , 415.472-3780. Click here to learn more about Charlie's Angels. In recent a blog post , Charlie shared his thoughts about the Meet & Greet program and penned an open letter to bullies which is well worth sharing. Go Charlie!Read more
Advocacy & Awareness
Tuesday, February 10, 2015
The bipartisan fiscal year (FY) 2015 omnibus appropriations package which passed in December will provide $30.08 billion for the National Institutes of Health (NIH), an increase of $149.7 million over FY 2014. This is very welcome news for the alopecia areata community, as significant federal funding for alopecia areata research comes from NIH and NAAF applauds the efforts of all House members and Senators who worked together to craft this package and voted for its passage. We also wish to commend NAAF’s Alopecia Areata Legislative Liaisons who met with their representatives both at home and...Read more
Research
Tuesday, February 10, 2015
During the first week of February, President Obama submitted his budget proposal for Fiscal Year 2016 to the newly-installed 114th Congress. It is particularly noteworthy the President’s budget mentions alopecia areata research activities, which indicates that the alopecia areata research portfolio is a priority for the National Institutes of Health (NIH). The President requests $31.31 billion for NIH, a recommended increase of $1 billion over FY 2015, with $533 million of that amount allocated towards NIH's National Institute of Arthritis & Musculoskeletal & Skin Diseases (NIAMS), an...Read more
Advocacy & Awareness
Wednesday, December 24, 2014
The Alopecia Areata Legislative Liaison program began in 2012 with just 12 volunteers who were selected for their willingness to engage congressional representatives and senators about issues involving the alopecia areata community. Since then, the program has increased dramatically both in size and efficacy. In September 2014, 15 Legislative Liaisons from 11 states joined NAAF’s retired President and CEO Vicki Kalabokes, Communications Director Gary Sherwood, and Chief Administration Officer Jeanne Rappoport to meet with the health aides of 30 senators and congressional representatives at...Read more
Research
Wednesday, December 24, 2014
Please note: This article has not been peer-reviewed or vetted by NAAF research advisors. NAAF neither endorses nor discredits the results and claims contained in the article. We pass along this information as it may be of interest to our community. We would appreciate your response if you have any relevant experience.Read more

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