Latest News

Research
Tuesday, July 26, 2016
Researchers from the Yale University Department of Dermatology recently conducted a review of all studies that have assessed the health-related quality of life of people with alopecia areata (AA). These results were published last week online in the Journal of the American Academy of Dermatology. Collectively, the studies included data from 1,986 patients and showed that in general people with AA experience a negative impact on quality of life, particularly in terms of social functioning and psychological and emotional distress. The quality of life experienced by people with AA is similar to...Read more
Advocacy & Awareness
Friday, July 22, 2016
In 2015, thanks to the tireless efforts of NAAF’s Legislative Liaisons and our community at large, the Food and Drug Administration (FDA) selected alopecia areata for a Patient-Focused Drug Development Initiative (PFDDI) meeting during FY2016–2017 to enhance regulatory assessment and help innovative new drugs receive approval. What this means: When the patient community informs regulatory decision-making, it usually creates a more preferential benefit-risk assessment. Regulators need to hear from you—your experience, your challenges and your pain. If you or a loved one has suffered with...Read more
Advocacy & Awareness
Friday, July 22, 2016
Throughout the spring and early summer, our Alopecia Areata Legislative Liaisons met with their U.S. representatives and senators in cities and towns across the country. Because lawmakers are often more encouraged to act when they see the numbers of their constituents who are affected by alopecia areata (particularly children), the Legislative Liaisons were encouraged to bring family and support group members. After being prepared with written materials, as well as by an hour-long recorded webinar, the Legislative Liaisons were instructed to make the following two asks: 1. Improve insurance...Read more
Research
Friday, May 27, 2016
The progress being made right now is thrilling, with advances in alopecia areata research and several treatments in development. The excitement was palpable during the many educational sessions, poster exhibits, social programs, and networking opportunities at the 75 th Annual Society for Investigative Dermatology (SID) conference in Scottsdale, Arizona, which took place May 11 to 14. This new era of research was celebrated by young, up-and-coming investigators, seasoned research advisors and industry representatives during NAAF’s Reception and Research Update. Together, NAAF President and...Read more
Advocacy & Awareness
Tuesday, May 24, 2016
On Tuesday, April 19, the Cranial Prosthetic Medicaid Coverage Enhancement Act was introduced to Congress, as bill H.R. 4989. We’re asking you to reach out to your congressional representatives and ask them cosponsor it. It is almost unheard of for an insurer to provide coverage for cranial prosthetics to those with alopecia areata. Coverage currently is mostly extended to individuals with hairloss secondary to chemotherapy. It’s an inequity NAAF has long struggled to address. After meeting with NAAF, Representative Jared Huffman (D-CA) and his staff agreed back in 2014 to author the Cranial...Read more
Advocacy & Awareness
Monday, April 4, 2016
Those who attended last year’s National Alopecia Areata Foundation Annual International Conference in Garden Grove will remember multi-talented Abby Asistio closing the event with an inspirational talk and new song . Recently, Abby had the opportunity to spread awareness of alopecia areata and share her story with none other than Mark Zuckerberg , Founder & CEO of Facebook. Here she describes how this significant meeting came about: “In February 2016, I had an amazing opportunity, not just for me but for the whole alopecia areata community, when I was chosen as 1 of 18 invited by Facebook...Read more
Research
Monday, April 4, 2016
NAAF representatives traveled to Washington, D.C., this month to attend the largest dermatology event of the year — the 74 th American Academy of Dermatology (AAD) Annual Meeting, which was packed with outstanding educational sessions, poster exhibits, social programs, and endless networking opportunities. Exhilarating new interest in the field of alopecia areata research was evident throughout this five-day meeting, held March 4 to 9, with over 18,500 attendees from across the United States — and the world! NAAF staffers participated in numerous medical and scientific groups that met in...Read more
Research
Monday, December 21, 2015
More exciting news for an emerging treatment in alopecia areata, and one patients tend to feel more comfortable with: a topical medication applied directly to the affected areas of hair loss. In the alopecia areata (AA) community, we are more or less familiar with the term “JAK inhibitors” as potential therapy for alopecia areata. Because of their role as immune modulators, having them available as topical agents is a very promising concept, and it has already been tested in mouse models. In this month’s online issue of JAMA Dermatology, Dr. Craiglow and colleagues from Yale University,...Read more
Research
Thursday, December 3, 2015
Another treatment shows success in three patients according to an article just published in the Journal of Allergy and Clinical Immunology . Recent developments in alopecia areata research have pointed out the similarities it shares with other autoimmune diseases. This has been of large benefit, allowing researchers to test medications in alopecia areata that are already approved and proven safe in other conditions. One such medication, ustekinumab, was tested by Dr. Emma Guttman-Yassky, and her research team at Mount Sinai hospital, NYC. Their new publication shows how extensive alopecia...Read more
Research
Monday, November 9, 2015
We are thrilled to announce the publication of NAAF’s fifth Alopecia Areata Research Summit, From Targets to Treatments: Bridging Autoimmune Research to Advance Understanding of Alopecia Areata, in the prestigious Journal of Investigative Dermatology Symposium Proceedings (JIDSP). Our semi-annual research summits serve to distill learning, chart the path forward and guide the research grants made through NAAF’s Treatment Development Program. The 2014 meeting represented a pivotal moment for alopecia areata research and treatment development with early stage clinical trials of drugs targeting...Read more
Advocacy & Awareness
Tuesday, September 22, 2015
For the third consecutive year, 16 Legislative Liaisons selected from 11 states will be joining NAAF’s Communications Director Gary Sherwood and Chief Administration Officer Jeanne Rappoport to meet with the health aides of thirty senators and congressional representatives at their offices in Washington, DC at the end of the month. The Legislative Liaisons will be asking for their lawmakers’ support on advancing alopecia areata research and three critical components of the Alopecia Areata Treatment Development Program: 1. Advance medical research by providing the National Institutes of Health...Read more
Research
Tuesday, September 22, 2015
This year, NAAF received 13 promising Research Grant proposals requesting over $1.8 million in response to our Research Funding Announcements (RFAs) publicized last May. NAAF’s Research Grant opportunities are designed to support scientists and clinicians to pursue promising research ideas and innovative projects that will advance the development or discovery of safe, effective, affordable treatments and a cure for alopecia areata. Each application will undergo a two-step, patient-centered review process to determine its eligibility for funding. The first phase of peer review is currently...Read more
Advocacy & Awareness
Monday, July 20, 2015
The National Alopecia Areata Foundation is raising awareness and increasing understanding of alopecia areata by calling attention to the shared challenges and triumphs of people living with any autoimmune or skin disease, hair loss, or the emotional pain that so often accompanies living with difference. In doing so, we hope to bring our stories to strengthen a budding national dialogue as we work together to increase acceptance and relieve suffering. The SeeUs Campaign is our approach to reducing the stigma of difference and celebrating the uniqueness and resiliency of people living with...Read more
Advocacy & Awareness
Thursday, July 2, 2015
On Thursday, July 2, the Food and Drug Administration (FDA) announced alopecia areata was one of eight diseases selected for a highly-coveted Patient-Focused Drug Development Initiative (PFDDI) meeting during FY 2016- 2017. The FDA committed to PFDDI with the goal of obtaining the patient perspective on certain disease areas. This information is a critical aspect of the FDA’s decision-making as it establishes the context in which the regulatory decision is made, and provides a more systematic approach for obtaining the patients' perspective on disease severity and currently available...Read more
Research
Wednesday, May 27, 2015
NAAF is pleased to publicize the release of 2015 Research Funding Announcements (RFAs) that outline Research Grant opportunities the support scientists and clinicians at various career stages and in numerous aspects of the field to pursue promising research ideas and innovative projects that will advance the development or discovery of safe, effective, affordable treatments and a cure for alopecia areata. These RFAs were publicized at the Society for Investigative Dermatology (SID) conference in Atlanta, Georgia in early May. This was a fitting venue for announcing RFAs since this meeting...Read more

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