6-18-2018_hara_support_dc_area_flyer.lr_.jpg

Washington, DC Metro Area Alopecia Areata HARA Presentation & Support Group Meeting

6-18-2018_hara_support_dc_area_flyer.lr_.jpg
Monday, June 18, 2018 - 8:00pm (ended)
Contact:
Miranda Guerriero
Phone: 
410-861-7797
Location: 
Dolley Madison Library
1244 Oak Ridge Avenue
McLean, VA 22101
United States

Monday, June 18, 2018

8:00pm

Location: 

Dolley Madison Library
1244 Oak Ridge Avenue

McLean, VA 22101 

Speaker: Miranda Guerriero

Health and Research Ambassador

National Alopecia Areata Foundation (NAAF)

 

Research for alopecia areata is quickly advancing now more than ever before. Therefore, it is especially

important to get involved with research so the endpoints that are measured and the outcomes that are

studied are valuable you. For years, researchers have studied outcomes that they perceived to be of value

to those with a disease, but with the creation of the federally funded Patient Centered Outcomes Research

Institute (PCORI), there is more of an emphasis on those with the disease giving input to researchers

regarding what is important to them. Please check out the PCORI website for more information on this

organization (http://www.pcori.org/about-us/why-pcori-was-created). In 2015, as part of our effort to build bridges of understanding between patients and the researchers and clinicians who design and deliver treatments, NAAF launched the Health and Research Ambassadors pilot project. This was led by Angela Rodgers, a medical student who is also a NAAF Sacramento Support Group Leader and a Legislative Liaison.

The HARA program teaches those with alopecia areata about how to get involved with research to ensure that your voice is heard and also ensure that what is meaningful to you—the patient—is what is being researched.

Come learn more about this exciting opportunity!