Washington, DC Metro Area Alopecia Areata HARA Presentation & Support Group Meeting
Monday, June 18, 2018
Dolley Madison Library
1244 Oak Ridge Avenue
McLean, VA 22101
Speaker: Miranda Guerriero
Health and Research Ambassador
National Alopecia Areata Foundation (NAAF)
Research for alopecia areata is quickly advancing now more than ever before. Therefore, it is especially
important to get involved with research so the endpoints that are measured and the outcomes that are
studied are valuable you. For years, researchers have studied outcomes that they perceived to be of value
to those with a disease, but with the creation of the federally funded Patient Centered Outcomes Research
Institute (PCORI), there is more of an emphasis on those with the disease giving input to researchers
regarding what is important to them. Please check out the PCORI website for more information on this
organization (http://www.pcori.org/about-us/why-pcori-was-created). In 2015, as part of our effort to build bridges of understanding between patients and the researchers and clinicians who design and deliver treatments, NAAF launched the Health and Research Ambassadors pilot project. This was led by Angela Rodgers, a medical student who is also a NAAF Sacramento Support Group Leader and a Legislative Liaison.
The HARA program teaches those with alopecia areata about how to get involved with research to ensure that your voice is heard and also ensure that what is meaningful to you—the patient—is what is being researched.
Come learn more about this exciting opportunity!