Study Exploring the Lived Experience of Alopecia Areata

Last Updated:
United States
Age 19+; diagnosed with alopecia areata for a period of 6 months or longer
The Catholic University of America

Individuals diagnosed with the autoimmune disorder alopecia areata are invited to share their experience by participating in a nursing research study being conducted by Sarah Caro, MS, RN, a Doctoral nursing candidate at The Catholic University of America.

The aim of this study is to learn more about the experience of living with alopecia areata from adult men and women 19 years of age and older. The knowledge gained from this research will assist nurses, healthcare providers, and members of the general public and community gain a better understanding of the lived experience of alopecia areata to identify support services and provide sensitive provision of healthcare during diagnosis and treatment.

Individuals are invited to participate if they are:

  1. An adult, male or female, 19 years of age or older
  2. Diagnosed with alopecia areata for a period of six months or longer

Potential participants will receive information about the study and sign an informed consent.  Participation in this study will involve one (1) 60-90 minute interview at the location of your choice or with web-based access to Skype services, completion of the Alopecia Areata Symptom Impact Scale, and a demographic questionnaire. To assure the depth of the interview and clarification of interview content participants may be contacted up to 3 times.  All collected data will remain confidential.  Participants can decline to engage in the study and may withdraw at any time.

To learn more about this study, please contact by email or phone:

Sarah Caro MS, RN, PhD Candidate, Researcher
The Catholic University of America School of Nursing
Phone: 443-299-9272