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Deirdre Nero Constituent Week

Legislative Liaisons Meet with Lawmakers Locally

“When can I meet with my representatives?”   That’s the most asked question from the Alopecia Areata Legislative Liaisons, and why they’re so excited to be meeting with their U.S. representatives and senators April 14 through April 25, what is known as “Constituent Work Week.”  As part of the coordinated effort, Deirdre Nero, our Alopecia Areata Legislative Liaison for Florida's 27th Congressional District, met with Representative Ileana Ros-Lehtinen on April 22. (see photo).Unlike previous meetings where NAAF advocates have travelled to Capitol Hill, these are held at the legislators’ local offices in cities and towns across America. Read more >>>

Maria Dermcast tv

Dermcast.tv Streams 4-Part Video Interview Series on Alopecia Areata

At NAAF’s 28th Annual Conference in St. Louis, the Society of Dermatology Physicians Assistants (SDPA) used their media arm, Dermcast.tv, to conduct four distinct interviews on the subject of alopecia areata. The interviews with Mat Cogan, “Treating Alopecia" and with Maureen McGettigan, "On The National Alopecia Areata Foundation,” debuted October 29th and November 8th. The other two videos, “Treating Alopecia - Jennifer DeFreece – National Alopecia Areata Foundation,” and Dr. Maria Hordinsky, "Alopecia 101 - Maria Hordinsky MD", are still available for viewing. Watch all four here>>>

Our Video & Other Materials Help Your Child Have a Good School Experiencence

School can be stressful for any child, especially those with alopecia areata.  The thought of going to class can be a source of anxiety and insecurity.  Luckily, we have many resources to help parents, students and schools be prepared, including a new video made by an 11-year-old girl with alopecia areata and the broadcasting instructor at her school.  We know you, your child and their school will find these materials helpful. Find Them Here>>>  


  

 

 

 

NAAF Research Summit Grant Receives Highest Score from Reviewers at the National Institutes of Health (NIH)

With three outstanding Medical and Scientific Co-Chairs, NAAF submitted an application to the National Institute of Arthritis and Musculoskeletal and Skin Diseases within the NIH for financial support of our next research summit in December 2014 in Bethesda, MD. Our application received a ten, the best score, from the Scientific Reviewers and we are hopeful that NIAMS and other Institutes and Centers within the NIH will be among our sponsors. If you or someone you know would like to be an individual or corporate sponsor of this summit, please contact Dory Kranz at 415-472-3780.

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NAAF is proud to unveil the Alopecia Areata Treatment Development Program Video, an emotional and informative 7-minute presentation of stories, reflections and personal accounts from both lay people and experts who understand and care about what is needed to help those with alopecia areata, world’s most common autoimmune disease. This video illustrates why NAAF’s Alopecia Areata Treatment Development Program is so vital to achieving one of NAAF’s most important goals:  finding effective, FDA-approved treatments that restore hair growth for people affected by alopecia areata. Watch Now>>  

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JID Publishes NAAF Research Summit Proceedings

The prestigious Journal of Investigative Dermatology (JID) has published the proceedings of NAAF’s 2012 Alopecia Areata Research Summit, From Basepairs to Bedside: Innovations in the Immunology & Clinical Science of Alopecia Areata, which analyzed progress that had been made in alopecia areata research over the previous two years and set the course for future research. 
Read More>>

Sammy Picou

The Voice’s Sammy Picou to Speak at NAAF Conference June 26 - 29th

Last fall, you saw Sammy Picou, aka Sammy C, sing on NBC’s The Voice.  The response to this amazingly talented 17-year-old singer-songwriter with alopecia areata was incredible.  And this summer you’ll be able to hear Sammy not only perform, but speak at our 29th Annual National Alopecia Areata Foundation International Conference in San Antonio, TX, June 26-29, 2014.  Read More & Register here >>

Bring the Conference Home with a Virtual Tortoise & Hair™ 

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Can’t make it to San Antonio?  Let San Antonio come to you!  That’s right, partner.  You can still participate in the Tortoise & Hair™ walk by creating a donation page that allows you to have a virtual Tortoise & Hair™ event OR round up your friends and hold your own walk on Saturday, June 28, the same day as the Conference walk around the Alamo, and know you’re walking with hundreds of others! Contact us today at 415-472-3780 to set up your virtual Tortoise & Hair™ donation page or your own local Tortoise & Hair™ walk.  Why, it’s just like having a little bit of Texas in your backyard!

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Need Information & Support? Request it Here!

If you or someone you know has been diagnosed specifically with alopecia areata, you may request information from NAAF by completing the form on this page. The NAAF support program offers different ways to create a sense of community amongst individuals with alopecia areata and their families. NAAF has support groups all over the world to provide a safe, comfortable and trusting environment.  Find Support Now 

 



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