Legislative Liaisons to Meet with Lawmakers
“When can I meet with my representatives?” That’s the most asked question from the Alopecia Areata Legislative Liaisons, and why they’re so excited to be meeting with their U.S. representatives and senators between the dates of April 14 through April 25, what is known as “Constituent Work Week.” Unlike previous meetings where NAAF advocates have travelled to Capitol Hill, these will be held at the legislators’ local offices in cities and towns across America. The Legislative Liaisons are being encouraged to bring family and support group members, as lawmakers may be more encouraged to act when they see the numbers of their constituents. Read more >>>
Dermcast.tv Streams 4-Part Video Interview Series on Alopecia Areata
At NAAF’s 28th Annual Conference in St. Louis, the Society of Dermatology Physicians Assistants (SDPA) used their media arm, Dermcast.tv, to conduct four distinct interviews on the subject of alopecia areata. The interviews with Mat Cogan, “Treating Alopecia" and with Maureen McGettigan, "On The National Alopecia Areata Foundation,” debuted October 29th and November 8th. The other two videos, “Treating Alopecia - Jennifer DeFreece – National Alopecia Areata Foundation,” and Dr. Maria Hordinsky, "Alopecia 101 - Maria Hordinsky MD", are still available for viewing. Watch all four here>>>
NAAF is proud to unveil the Alopecia Areata Treatment Development Program Video, an emotional and informative 7-minute presentation of stories, reflections and personal accounts from both lay people and experts who understand and care about what is needed to help those with alopecia areata, the world’s most common autoimmune disease. This video illustrates why NAAF’s Alopecia Areata Treatment Development Program is so vital to achieving one of NAAF’s most important goals: finding effective, FDA-approved treatments that restore hair growth for people affected by alopecia areata. Watch Now>>
JID Publishes NAAF Research Summit Proceedings
The prestigious Journal of Investigative Dermatology (JID) has published the proceedings of NAAF’s 2012 Alopecia Areata Research Summit, From Basepairs to Bedside: Innovations in the Immunology & Clinical Science of Alopecia Areata, which analyzed progress that had been made in alopecia areata research over the previous two years and set the course for future research.
Charlie Villanueva is coming to your town, and he wants to see you!
Since 2005, National Basketball Association (NBA) Player, Charlie Villanueva, of the Detroit Pistons, has been participating in Meet & Greets with the NAAF community members at various arenas around the country before his games. As Charlie himself has alopecia areata, he wants to meet with you and your family, and his Meet & Greets always feature conversations, pictures, hugs, and autographs. In fact, the success of the program was the primary reason for Charlie winning the NBA’s Community Assist Award in February of 2006. Charlie looks forward to seeing you! Check the 2013-2014 Schedule for a game near you>>>
Spur the Cure with NAAF in San Antonio, Texas! Home of the Alamo
Make your reservations NOW for the 29th Annual NAAF International Conference, which will take place from Thursday, June 26, through Sunday, June 29, in San Antonio, Texas. This unforgettable experience will provide you with all the information you need, including the latest medical and research update of the Alopecia Areata Treatment Development Program, to better understand and manage alopecia areata. It will also provide you with a wealth of support. Read More & Register here >>
Need Information & Support? Request it Here!
If you or someone you know has been diagnosed specifically with alopecia areata, you may request information from NAAF by completing the form on this page. The NAAF support program offers different ways to create a sense of community amongst individuals with alopecia areata and their families. NAAF has support groups all over the world to provide a safe, comfortable and trusting environment. Find Support Now
Our Video & Other Materials Help Your Child Have a Good School Experiencence
School can be stressful for any child, especially those with alopecia areata. The thought of going to class can be a source of anxiety and insecurity. Luckily, we have many resources to help parents, students and schools be prepared, including a new video made by an 11-year-old girl with alopecia areata and the broadcasting instructor at her school. We know you, your child and their school will find these materials helpful. Find Them Here>>>